DEALING WITH RELAPSING POLYCHONDRITIS

DEALING WITH RP

I AM 45 YEARS OLD. I WAS DIAGNOSED WITH RP ( RELAPSING POLYCHONDRITIS ) IN JUNE 2010. I WOULD LIKE TO TELL YOU A LITTLE ABOUT RP AND THE EFFECTS THAT IT HAS ON PEOPLE THAT STRUGGLE WITH RP. RP IS A RARE AUTOIMMUNE RHEUMATIC DISORDER CHARACTERIZED BY EPISODES OF PAINFUL, DESTRUCTIVE INFLAMMATION OF THE CARTILAGE AND OTHER CONNECTIVE TISSUES IN MANY ORGANS. THE EARS OR NOSE MAY BECOME INFLAMED AND TENDER. THE OFTEN PAINFUL DISEASE CAN CAUSE JOINT DEFORMITY AND BE LIFE-THREATENING IF THE RESPIRATORY TRACT, HEART VALVES, OR BLOOD VESSELS ARE AFFECTED.

THE CAUSE OF THIS DISEASE IS NOT KNOWN. 

I STRUGGLE OFTEN WITH THIS AWFUL DISEASE, WAKING UP NOT KNOWING HOW I'M GOING TO FEEL OR HOW MY DAY WILL BE. IT BE DAYS I JUST CAN'T GET OUT THE BED BECAUSE I BE IN SO MUCH PAIN. MY HUSBAND IS TRULY A BLESSING AND SUCH A GOOD SUPPORTER. HE IS ALWAYS BY MY SIDE. I MOSTLY CAN KEEP IT UNDER CONTROL AS LONG AS I TAKE MY MEDICINES. I CAN TELL WHEN I AM ABOUT TO FLARE UP, SO I MAY HAVE TO UP MY DOSE OF MEDICINE TO STOP THE FLARE. CERTAIN THINGS THAT I DO TRIGER ME OFF AND THAT'S WHAT I'M WORKING ON NOW TO SEE WHAT I NEED TO ELIMINATE TO STOP ME FROM HAVING FLARES AND GOING THROUGH THIS.

EATING CERTAIN FOODS CAN EVEN CAUSE ME TO FLARE ME UP. I JUST LEARNED THAT A LOT OF FOOD HAS INFLAMMATION IN IT. SO DEALING WITH RP IS NO FUN FOR ME AND OTHER PEOPLE WHO IS FIGHTING WITH THIS DISEASE. I AM ALSO I A COUPE OF GROUPS THAT BATTLE WITH THIS AND WE UPLIFT ONE ANOTHER AND I AM LEARNING A LOT FORM THEM AS WELL. I WILL NOT STOP DOING MY RESEARCH ON RP AND I WANT THE WORLD TO KNOW ABOUT THIS.

 

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